Risk communication in cancer genetics: lay people's expectations and providers' practices (CRISCOM)

Grunddaten zu diesem Projekt

Beschreibung

The heterogeneity of Cancer genetic clinics content is poorly documented at the European level, and no comparative data exist on the expectations and health priorities perceived both by lay people and by health care providers. The general objective of this proposal is to co-ordinate activities to prepare a European RTD project on lay people's expectations and on providers' practices on risk communication in cancer genetics in 8 European countries. The steps are first to design a study to compare the content of national cancer genetic clinics through standardised measurements and second to design and to cross-culturally validate two protocols and their measurement tools (questionnaires in every nation language). This will be carried out through panels that will work on specific objectives and meet to share their positions during 3 workshops.